marfan.orgKnow the signs. Fight for victory. | The Marfan Foundation Profile


Title:Know the signs. Fight for victory. | The Marfan Foundation

Description:Marfan syndrome is a life-threatening genetic disorder and an early accurate diagnosis is essential not only for people with Marfan syndrome but

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Know the signs. Fight for victory. | The Marfan Foundation Skip to main content The Marfan Foundation Marfan & Related DisordersWhat is Marfan Syndrome?What are Related Disorders?What are the Signs?How is the Body Affected?Current ResearchWhat to ExpectGetting DiagnosedTreatmentResources & AnswersPatients & FamiliesHealthcare ProfessionalsResearchersWalk For VictoryGet InvolvedWays to GiveWalk for VictorySpecial EventsAnnual ConferenceRegional SymposiumsMarfan CampsVolunteerParticipate in a StudyConnect with CommunityAbout UsThe Marfan FoundationHow We HelpEvents Around the CountryNewsBoards & StaffAnnual Report & FinancialsContact UsDonate Slider Static NavFor Patients & FamiliesFor Healthcare ProfessionalsFor Researchers ANNUAL CONFERENCE Register Today! Marfan Camps Camps are in April and July 2018. Click here for details. CHANGE THE FUTURE Our research and progress depends on you. Click here to donate today. NYC Symposium Click here for info and to learn about other symposiums in the coming year. LOOKING FOR A DOCTOR? We can help.Click here. WALK FOR VICTORY! We are going to 16 markets this year. Click here to find one near you. GENETIC TESTING Click here to learn about genetic testing for Marfan and related disorders. COMMUNITY CALENDAR Click to see what's happening around the country! Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more. LATEST NEWS Feb 20 The Marfan Foundation Announces Honorees for 2018 HeartWorks in New York CityTony Award winner Ann Reinking, physician-scientist Dr. Reed Pyeritz, and healthcare marketing and PR professional Gil Bashe to be honored. Feb 14 The Marfan Foundation to Celebrate a Decade of Progress at the 10th Heartworks St. Louis Gala, on March 17The Marfan Foundation will celebrate a Decade of Progress and honor Dr. Marcia Willing at the 10th Heartworks St. Louis gala. Jan 29 #KnowFightWin for Marfan Awareness MonthFebruary is Marfan Awareness Month and The Marfan Foundation urges everyone in the Marfan and related disorders community to get involved. STAY CONNECTEDJoin our email list to get the latest Marfan related news and updates delivered to your inbox. SHOW YOUR SUPPORTKnow the signs. Fight for victory.Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.DONATE NOW CALL OUR HELP CENTER:800-8-MARFAN x126 EMAIL SIGN UP FOR UPDATES: ©2014 Marfan Foundation | Privacy Statement Intranet | Glossary... Whois

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